Increased my steroids yesterday

After it took my pharmacy two days to receive my steroids, I started the increased dosage Saturday. I had trouble sleeping last night. Not so much sleeping but falling asleep. Once I did, I slept thru the night. Normally, since the diagnosis, I take an RSO capsule to aid with falling asleep. The RSO just allows me to drift off into lala land and I fall asleep easily. The steroid just kept my mind active.

I was on a single dose of 4mg once a day. This new dose is 4mg 3x a day. I’ve not noticed any side effects from the steroid or the increased dosage. I do notice I am no longer getting daily headaches since on it. Bonus I suppose.
I will take whatever wins I can get thus far. Small wins are wins. I should probably take the stomach med Protonix, but I’ve not noticed any GI distress as of yet.

Tomorrow I go to the neuro surgeon again for a consult regarding the biopsy the tumor board wants me to get. Kind of a little nervous about that. Not sure what they’ll say. I’ll just take the appointment as it comes- see how it goes. I noticed on my patient portal that they have surgical appointment set for Thursday. I guess it’s a go regardless. It’s on the books.

This coming week seems like it will be a whirlwind. I have multiple appointments with the oncologists and pt/ot/speech therapy, along with a surgical consult and possible biopsy to be performed Thursday. Friday, if all goes well with the biopsy and I’m not left a vegetable, I have the pt/ot/speech therapy in the morning.

Friday afternoon I am supposed to surrender my Jeep Grand Cherokee. I recently won a lemon law buy back situation with FCA/Chrysler. Surrender is for 2pm at a local dealership. Both me and my wife have to be there for surrender. This has been a long time coming. I can’t wait to be rid of this lemon vehicle. It’s been sitting in the driveway untagged, un-insured and waiting on them to finalize payment back to me. Lots going on this week and I can’t wait to be done with the car portion. This should allow me more focus on the treatment and not to have the burden of the lemon vehicle just sitting there collecting the pollen that falls this time of year.

I also received some smoking cessation patches and gum in the mail yesterday. I quit smoking cigs back in 2012 but started vaping then. They say quitting vaping will be more difficult than the cigs but we shall see. I have been supplementing the vape with an air device. No combustion or vape going into my lungs just air. It seems to help but I still crave the nicotine. This was also set up by my oncology team thru the hospital. My quit date is a week from Wednesday. They tell me to continue with the vape until the quit date and try little mini quits in between a week ago and the quit date.

Wish me luck as this week seems like a fresh new hell of appointments to deal with.

We went to the garden on olives last night for dinner, I had some lasagna and a free take home meal of spaghetti and meatsauce. It was delish. Tonight we had the spaghetti meatsauce and some salad.