So I met with the Neuro Oncologist today, Dr. P.
She said the preliminary pathology report shows no sign of growth, no migration, no mutation, no necrosis. Low grade 2 glioma. We’ll take it doc! This is good news to me. I was thinking it was worse than what it was. The tumor does not light up with contrast. I suppose that is good also. We are waiting on the rest of the pathology to confirm all this and get treatment scheduled. I’m happy. My Neuro Surgeon wants to see me in 3 months for a recheck. Sutures were removed. I’m gaining strength back slowly. The nurses were all smiles today when doing the strength tests in the office. Dr P was happy as well. May start a headache med soon to combat the pains I get in the morning and night. Tapering the steroid as planned this weekend. I will have another MRI soon to show more. But all in all it was a great day at the cancer center. I picked up my rx’s at the pharmacy today. Had I known one of them was over the counter, I would have ordered it already. Oh well, it’ll be here tomorrow.

So let’s get in to last night. My phone rings at 9:15pm. Normally I wouldn’t answer but I recognized the number as one of my Physical Therapists. I was intrigued as to why they’d be calling so late. I answer and ask what’s going on. He then tells me that my appointment was moved to today, Friday. I said well that would have been nice to know 7 hours ago when the appointment was scheduled. He said oh I must not have called… No guy, you didn’t and I’m not gonna wait around for it. Also, wouldn’t it be nice to let a patient know that they were bumped/cancelled instead of me waiting for a non existent appointment. Rude. Not too happy about being ghosted like that. That’s twice, the Occupational Therapist never called or showed for Wednesday’s appointment. Now you, the PT never called or showed for Thursday’s appointment. I understand we patients may not be as mobile but guess what, we have lives too. Maybe a small courtesy would be to let your patient know you would not be making the scheduled appointment. I sure hope your company isn’t charging my insurance for appointments YOU don’t keep. Now I have an appointment scheduled for PT today between 2pm-4pm. We will see if he shows. I hate waiting and I hate being ghosted.
All in all it was a good day so far. Had lunch, and a snack. Did some work this afternoon, clued in my assistant to the good news. Told the family the good news. I had to come on early and write about the findings. I may write more later after the PT appointment. I may not. Depends on my mood. I’m tired from the long morning.
I’m so happy to share this with you all. It’s been a long few months and I know I’m just at the beginning. But here’s to prayer and positivity. Keep it up! It works. Stay focused, one day at a time. Let go and Let God do his work. Keep that positive mind set. It helps more than you know. It helps all around you stay focused as well. Let’s Go!
Thank you for stopping by,
Bruce
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