Tapering Steroid

This week I have been tapering down my steroid dex. It’s been ok til this afternoon. I had some more wobbliness and weakness. I don’t like this feeling. I canceled my PT today as I didn’t think it would be too wise to do in this state. I can get around I just don’t think I can exert myself like before.

This morning I was fine getting around. It hit me after lunch. Just increased tiredness. I took a small nap this afternoon. I got cleaned up. I messaged my care team through my patient portal app. Hoping to hear back soon about increasing my dosage back to at least last weeks dose. I hate not being able to move freely.

My mom came by today. We hung out and watched some old shows. We chatted and had lunch. Pancake, the big one, got a kiss from her. Chip stayed away until she left. He can be antisocial at times. Pancake is very social. He even does this social flop in front of me as I walk. It makes me nervous getting around with him swarming me. Both boys swarm me when I’m up and walking. They like to go for my cane and pat it and knock it over when I go in the kitchen. Sometimes I wake up to Pancake messing with my cane bedside. Bengal Brats.

This afternoon I wanted something sweet so I went in the kitchen, got some water and grabbed a bag of Russell Stovers sugar free candies. I had a peanut butter cup and a minty one like a York Patty. It was good.

I can actually see to type without the patch at the moment. What a nice thing to see, single vision. Let’s hope this comes back sooner than later. This morning I wore the patch while I did some ordering etc. This afternoon seems to be a bit different, not as bad with the eyes. Like I said yesterday, as long as I’m not too tired and what I’m looking at is within 18″ of my face I can see just fine.

I have been using Instacart as I have posted before. I’ve racked up some restaurant credits using it. I had my mom show me how to use the credits. I preordered some meals for tomorrow and Saturday because these credits will expire soon. Tomorrow is Chick Fila like usual. My wife texted me she wanted some spaghetti. I thought we’d get Olive Garden but that’s not offered through the app or uber eats credits. So we are going to have Carrabba’s spaghetti Saturday. I can’t wait.

I got a call today from a specialty pharmacy. They ordered my chemo meds for delivery. They’ll be here Tuesday. I didn’t realize it would have to be a specialty pharmacy. No cost for the meds, thank God. I was thinking it may be ordered through my regular pharmacy. I’m still waiting on a coordinator to call me back in regards to Proton Radiation therapy rather than Photon Radiation therapy. Proton is more targeted to the tumor itself. Photon is more xray style and would not be as targeted. I’m calling them now to find out if I can get in with them. I had a referral to one but it was in downtown Orlando. Too far to drive.

So light day today, but still a good day even with the lesser steroid dose. My eyes are starting to go wonky again so I will end this post.

Thank you for stopping by.
~Bruce